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  • Sharon Fumia

Update: Mackenzie & Emma

Hello Everyone!

Please know that I am so very thankful for each of you. I am far away in Texas, but I feel like you are all just a heartbeat away.

Mackenzie has finally been extubated! She is now on support air. The nurses call it CPAP. The heart surgery worked and the hole has remained closed. She is already taking more than 12 mls of breast milk and is tolerating it with little residual.

But oh my... is she one feisty baby girl! She hates having the head gear on and if her arms don't have bean bags on them, she has her little hands up there trying to undo anything her fingers can touch... even her feeding tube! Wow! Smart little cookie! Her blood pressure went down a bit today, but they figured out that it had to do with the nutrition tube. It has some initials that begin with the letter "T" but I can't remember what it is. So now her blood pressure and her blood sugar have been regulated and she's heading back to normal again.

Emma was very sick for the last week. They were testing everything to figure out what it was. It turned out to be a staph infection that got into her blood stream. They were worried about it being MRSA, but thankfully it was NOT that! They put her on 10-14 days of antibiotics. Her little body could not handle whatever it was and they had to intubate her again, but she is looking so much better and they took that tube out again. Plus, she is back on her feeds.

Emma is not on pain meds, so she is resting comfortably for the first time in a long time. Mackenzie was on pain meds for almost the entire time she's been born. She is experiencing withdrawals and they can only wean her ever so slowly and the same with her steroids. So please pray that she can get through this. It is the thing that concerns the doctors and us the most.

Below are some pictures from yesterday and today.

This is Mackenzie, she is now 2 pounds 7 ounces.

And this is Emma, she is now 2 pounds 4 ounces.

This is Mackenzie saying hello today...if I didn't know any better I would say she looks like she's smiling!

Love you all so much!


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